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CRANE
@CRANE_News
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Cleft Registry and Audit NEtwork (CRANE) Database. Promoting excellence in cleft care.
Royal College of Surgeons, Eng
Joined July 2019
π’ The CRANE 2024 ANNUAL REPORT is live! Download it here π 𧑠Thank you to all cleft services in the UK for the collection and submission of data to the CRANE Database! @CFSGBI and @CLAPACOMMUNITY collaboration
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π§ Have you read our winter newsletter? Including updates on π 2025 Workshops and Webinars π Latest publications π CRANE Annual Report π Key Dates for 2025 Download it here CRANE is a @CLAPACOMMUNITY
@CFSGBI collaboration
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Important dates for the diary! π CRANE Database Making it better session Monday 20th January 2025, 10:30 to 12:00 π» CRANE Database Q&A session Wednesday 5th February 2025, 10:30 to 12:00 View previous presentations and summaries here @CFSGBI
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π We have linked >11,000 children with a cleft to the Newborn Hearing Screening Programme. 61% had an audiology outcome recorded. Of these; πΈ 47% had satisfactory hearing in both ears πΈ 38% had a hearing loss πΈ 15% were unknown π @CLAPACOMMUNITY
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π’ The 2024 Patient and Parent/Carer Summary of our ANNUAL REPORT is live to download! π Thank you to the families who allow cleft services to collect and submit data to the CRANE Database! π Find out more @CLAPACOMMUNITY
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β¨ We would like to wish you all a Merry Christmas and Happy New Year! β¨ β€οΈ Thank you for your support throughout 2024; we hope to continue working with you for a productive 2025! @CRANE_News is a @CFSGBI & @CLAPACOMMUNITY collaboration
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Have you downloaded the CRANE 2024 ANNUAL REPORTβοΈ Download it here π 𧑠Thank you to all cleft services in the UK for the collection and submission of data to the CRANE Database! @CFSGBI and @CLAPACOMMUNITY collaboration
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β AUDIT β We look forward to consulting with all CEN groups in the coming months on our upcoming organisational audit. We will present the findings at CFSGBI Newcastle in 2025. π @CFSGBI
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π CLAPA's big give campaign is coming up! If you are able to give in December - please ensure it is between the 3rd and the 10th December as all funds will be matched in this time period. LETS GIVE #ChristmasChallenge
@CLAPACOMMUNITY
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If you missed our first CLAPA-CRANE Q&A for patients/public, you can watch the recording at Find out: πΈ Who we are πΈ What we collect πΈ How we use patient data @CLAPACOMMUNITY @UseMyData
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π§ Have you read our autumn newsletter? Including updates on π 2025 Workshops and Webinars π A new look for the CRANE Database π CRANE Annual Check π Key Dates incl. 2025 Timeline Download it here CRANE is a @CLAPACOMMUNITY @CFSGBI collaboration
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β¨ New Database Launch β¨ Work has been going on behind the scenes at CRANE to update our Database. βοΈ Many thanks to Crown Informatics () for ensuring the safety and security of our data! @UseMyData
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π° Read our Autumn Newsletter for the latest @CRANE_News updates and information Download your copy here π CRANE is a @CLAPACOMMUNITY
@CFSGBI collaboration
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π’ Our recent journal article has been accepted for publication in CPCJ! π Investigating the impact of additional congenital malformations on speech outcomes at age 5 in children with a cleft palate. See all our publications here @AmerCleftPalate
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Next deadline for data submission to CRANE, for cleft lip and palate services, for the Q2 2024/25 Specialised Services Quality Dashboard: βοΈ Friday 6th Dec 2024 βοΈ π Download key guidance here βContact us: crane@rcseng.ac.uk
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Important dates for the diary! π CRANE Database Making it better session Monday 20th January 2025, 10:30 to 12:00 π» CRANE Database Q&A session Wednesday 5th February 2025, 10:30 to 12:00 View previous presentations and summaries here @CFSGBI
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Did you catch our first CLAPA-CRANE Q&A for patients/public earlier this month? If not, you can watch the recording at Find out: πΈ Who we are πΈ What we collect πΈ How we use patient data @CLAPACOMMUNITY @UseMyData
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Using CRANE data linked to the Newborn Hearing Screening Programme we found: π 3 out of 4 children with a cleft had a clear response in both ears on their newborn hearing screen. Thank you to CLEFT for making this work possible! @Cleft_Charity
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