Cerebral Palsy Research Network
@CPRN_org
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Cerebral Palsy Research Network | Community | Research | Education | A diverse community that moves forward #CP research & quality healthcare.
United States of America
Joined December 2011
We are extending our work into the NICU with early detection and now a registry for hypoxic schemic encephalopathy (HIE). Join us for a webinar with @HopeforHIE and Principla Investigator @DanielleGBarber. Register at
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@NCHPAD Love @NCHPAD programs and their partnership. Very "can do" with glowing results from our #cerebralpalsy community members that participate. Learn more at
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Great work! If this can create improved practices uniformly, it will greatly benefit what we can do for the CP community and "protocolize" care more.
The *NEW* @AANmember Child Neurology Quality Measures set opens for public comment on March 8! Amongst the new measures are 2 I'm esp. proud of: genetic testing for everyone with #cerebralpalsy, and documentation of GMFCS for everyone with #cerebralpalsy
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Thrilled to have hired Joyce Trost, PT, PhD as our Director of Registries! Her track record @GilletteChildrn as their Director of Research will serve our growth and research needs.
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So true!
Iona is a huge force in the field of #CerebralPalsy. Well deserved, and congratulations to my good friend.
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Thanks for all your hospitality and generosity!
The brightest minds in #CP research united in Wilmington, DE for the annual meeting of the @CPRN_org, hosted by the esteemed Nemours Children's CP Center. Together, we're advancing the frontiers of cerebral palsy research. 🤝💡 #CPRNAnnualMeeting #CPResearchLeaders
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Do you want to be at the center of the fastest growing registry for #cerebralpalsy research? Do you have a PhD in clinical epidemiology, rehabilitation science, or several years of clinical research with a masters level degree? Apply:
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We are excited to share the details and benefits of our new partnership for both the community members and the research community for #cerebralpalsy. 1+1=(a lot more than 2)!
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We share in the excitement with @ResearchForCP where our priorities are aligned and are skills are very complementary. We look for to doing great things together for the #CerebralPalsy community -- people living with CP, caregivers and families and the clinician researchers!
We’re excited to announce that we’re partnering with @CPRN_org to transform the lives of people with #CerebralPalsy! The partnership will generate new findings about #CP & ensure that people with CP and their parents, caregivers & medical teams can benefit from proven science.
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As always, we expect this webinar to be clear, meaningful and well thought out. Join@Dr Bhooma to learn more about more about Adults with intellectual and developmental disabilities!
This webinar and all others in this series will be posted at our Adult IDD Webinar YouTube Channel:
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Happy to be sharing more #CPStories with today's glimpse into the motivations and impact of @drbhooma who is truly a bright light, a rising star and an incredible leader in the care of people with #CerebralPalsy.
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Gina Kline is powerfully summarizing the importance and opportunities to innovate for the disability economy at the #RemarkableTechSummit. Thanks @RemarkableTech for putting together such a meaningful program about #AssistiveTech that will impact #cerebralpalsy outcomes.
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@jkaufmanconsult @RemarkableTech @petehorsley Love your statement that "the disability community is the only minority group that anyone might join at any time" (hope I didn't misquote) at the #RemarkableTechSummit
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Very excited to be at the #RemarkableTechSummit to see how the CP Research Network can help #AssistiveTech entrepreneurs bring advances to market to help the #cerebralpalsy community. Thanks to @RemarkableTech!
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So excited to be partnering with Steve Wisniewski, PhD, from Pitt's Epidemiology Data Center to be our new Data Coordinating Center PI! Pitt will host our two #cerebralpalsy registries and be our partner in research for numerous studies under development.
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RT @Thecookingdoc: Hey @RegalMovies why make theaters like this? Only accessible seating in the very front - where no one wants to sit and…
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@drbhooma does it again! Parents should check out her new study of sensory processing for people with #cerebralpalsy hosted on the CP Research Network Community Registry. or
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