Children's Cardiomyopathy Foundation
@CCFheartkids
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The Children's Cardiomyopathy Foundation (CCF) is a non-profit organization focused on pediatric cardiomyopathy, a chronic disease of the heart muscle.
New Jersey, USA
Joined January 2010
During #AmericanHeartMonth, shop at Livoti’s Old World Market in New Jersey to support CCF. Customers can round up for CCF’s kids and families when they check out at any one of Livoti’s five locations in New Jersey. #KidsHeartMonth #livotisoldworldmarket
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Let’s #GoRed! ❤️ Show your support for CCF’s Heart Kids and wear red today. This condition doesn’t just affect adults—it impacts children of all ages, genders, and backgrounds. Tag us @CCFHeartKids! #KidsHeartMonth #HeartHealthChampion
#TogetherWeCan #GoRedForKids
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Don't miss our special #HeartMonth edition of Experts on Pediatric Cardiomyopathy! Join Drs. @CarolynHoMD of @BrighamWomens and @jpkaski of @UCL_ICS as they discuss the CEDAR-HCM pediatric clinical trial sponsored by @Cytokinetics. Register today:
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Cardiomyopathy is a rare and often progressive heart disease in children. Cardiomyopathy can be concerning because it's often undetected and untreated. Learn more about #PediatricCardiomyopathy: #AmericanHeartMonth #GoRedForKids #KidsHeartMonth
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Did you know? Pediatric cardiomyopathy is a chronic disease of the heart muscle impacting how the heart pumps blood. But it often goes unnoticed. This Feb take the pledge to become a #HeartHealthChampion for kids w/ cardiomyopathy: #HeartHealthChampion
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Myth: Heart Disease is Only for Adults Fact: Pediatric cardiomyopathy is one of the leading causes of sudden cardiac arrest in children. Yet, awareness remains low. Pledge to be a Heart Health Champion for heart kids. #TakeThePledge #HeartHealthChampion
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During #AmericanHeartMonth, shop at Livoti’s Old World Market in New Jersey to support CCF. Customers can round up for CCF’s kids and families when they check out at any one of Livoti’s five locations in New Jersey. #KidsHeartMonth #livotisoldworldmarket
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❤️ It's #AmericanHeartMonth – Take the pledge and become a Heart Health Champion for kids with cardiomyopathy. Every share, post, and conversation makes a difference! Take the pledge today. #KidsHeartMonth #HeartHealthChampion
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Proud moment!
We're happy to welcome our newest NORD Member Organization, Children's Cardiomyopathy Foundation, @CCFheartkids! Learn how they're advancing care and support for families affected by pediatric #cardiomyopathy and other heart-related rare diseases: #HeartHealth #CCFheartkids
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We’re helping @phwsca spread the word for tomorrow’s National Youth Screening Day—a life saving initiative dedicated to raising awareness and encouraging heart screenings for youth at-risk of cardiomyopathy and other heart conditions. Learn more:
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Don't miss our special #HeartMonth edition of Experts on Pediatric Cardiomyopathy! Join Drs. @CarolynHoMD of @BrighamWomens and @jpkaski of @UCL_ICS as they discuss the CEDAR-HCM pediatric clinical trial sponsored by @Cytokinetics. Register today:
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Who doesn’t love receiving an award? We are once again in the running for a Top-Rated Nonprofit seal for 2025 @greatnonprofits. Help raise visibility for CCF’s support services with a quick review. #toprated #greatnonprofit
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Discover SCOUT-HCM, study examining the effectiveness of an adult-approved treatment in adolescents with obstructive HCM. Current treatment can continue. Participation is free. Charges for standard of care may apply. Learn more here: #ClinicalTrial
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CCF’s founder shared why the Hearts Act—the 1st law focusing on cardiomyopathy & reducing sudden cardiac arrest in youth—is deeply personal. As an advocate for families, she knows its life-saving impact & peace of mind for families. Listen here:
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Who doesn’t love receiving an award? We are once again in the running for a Top-Rated Nonprofit seal for 2025 @greatnonprofits. Help raise visibility for CCF’s support services with a quick review. #toprated #greatnonprofit
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Join us on January 22 for the GCAC webinar and be the first to hear about the exciting launch of the Genetic Cardiomyopathy Registry. Register now to secure your spot!
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Exciting news! A new CCF-funded study has been published in Circulation, the prestigious journal of the @American_Heart, exploring how microRNAs might help predict recovery or progression in children with dilated cardiomyopathy. Read the full article here:
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Who doesn’t love receiving an award? We are once again in the running for a Top-Rated Nonprofit seal for 2025 @greatnonprofits. Help raise visibility for CCF’s support services with a quick review. #toprated #greatnonprofit
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Join a new study for adolescents with obstructive hypertrophic cardiomyopathy (HCM). Current treatment can continue during the study, which is free of charge. Charges for standard of care might still apply. Lear more here: #ClinicalTrial
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Exciting news! Founder and President, Lisa Yue, was recently interviewed on @WSHUPublicRadio about the Cardiomyopathy HEARTS Act. Lisa and the CCF Team worked tirelessly with legislators to champion this bill, which is now officially signed into law. 👏
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