Natacha Bolaños
@BolanosNat
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Lymphoma Coalition | Head of Membership & Alliiances. Patient Advocate interested in R&D, Capacity Building, Patient's rights, Policy. Cooperation is my motto.
Comunidad de Madrid, España
Joined November 2016
@JMMartinMoreno Magnífica y pertinente reflexión. Parece ser esta la era del circo y del linchamiento público. Todo vale para mantener distraída a la sociedad de lo que de verdad importa. También hay un problema de incontinencia verbal, se vomitan opiniones en RRSS sin apenas reflexionar.
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Prof Andres Ferreri, @SanRaffaeleMI @FIL_ETS discussing the difficulties and solutions for Primary central nervous system #lymphoma (PCNSL) at #ESMO2024 @knowyournodes #lymsm
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Had the pleasure of spending time with Jana Pelouchova at #ESMO2024. Her unwavering integrity and commitment to honest, impactful #patientadvocacy truly inspire. Conversations like these remind us of the real impact we can make in the #cancer community. #ESMO2024
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It was a true pleasure catching up with @JMMartinMoreno during the #ESMO2024 dinner. His passion for public health and dedication to improving #CancerCare are always inspiring. Conversations with him are not only insightful but also a reminder of the heart behind the work we do.
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"Thank you to the @EHA_Hematology for your invaluable partnership with #patientadvocacy groups and your commitment to improving clinical practice standards in #lymphoma. Together, we’re making strides towards better care and outcomes. #WLAD2024 @EHAPatient
On #WorldLymphomaAwarenessDay, we focus on the importance of honest conversations between patients and caregivers or family around emotional concerns and how access to specialist resources. Read more about best practices with a debate and CLL patient clinical simulation in our course: #WLAD2024 #lymphoma #CLL @knowyournodes Curious about our patient involvement? The Lymphoma Coalition is also a member of our @EHAPatient committee.
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RT @TheEBMT: 📅 Today marks the 20th #WorldLymphomaAwarenessDay. 📣 Lymphoma Coalition's -24 campaign highlights the emotional impact of livi…
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Today is World Lymphoma Awareness Day #WLAD2024 Grateful to all healthcare professionals encouraging patients with #lymphoma to have Honest Talks, express their feelings, and report symptoms impacting their experience. @DrRaulCordoba @EliLymphoma @FIL_ETS @LymphomaEx @hnhcp
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@hematologiamadr @DrAlbertoLG Es tan triste esta noticia que se acongoja el alma...no tengo palabras. Se fue un grande muy joven. RIP.
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@HematoRules Esta es la noticia más triste desde hace mucho tiempo. Se le va a echar muchísimo de menos.
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@JMMartinMoreno Estoy tan de acuerdo contigo.... Y si, estamos no sólo hartos sino avergonzados de tanto sin sentido y sin respeto. Muchas gracias por tus reflexiones.
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@JMMartinMoreno Para jugar "tres en raya" a lo grande! Con tu amigo que vive al otro lado del mundo! :)
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RT @medicosergio: ::: El ejercicio como “medicamento” :::! Efectos moleculares (+) del #ejercicio LINK: https://t.…
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@JosuIraola1 @HematoRules @VHIO @VHIR_ @Hemato_Vhebron Do you have or know about any trial on CAR-T anti CD 7? I am desperate trying to find a trial for a patient?
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@pebarba @Hemato_Vhebron @VHIR_ @VHIO @BSTVH_ This is so excited and promising!! @TheEBMT_PAC wants to know more. May I get in touch with you?
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Precision / personalised medicine needs to be connected with PROcision medicine, targeting #patient reported outcomes. #EBMT23 Patient Advocacy Sessions. @TheEBMT_PAC
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When it comes to cancer drug side-effects, it’s about what you’ll tolerate to stay alive
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In 56 countries women (but not men) are subjected to some type of constraint on their mobility, including 31 countries where a woman cannot obtain a passport in the same way a man can. #InternationalWomensDay
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