Beyond the Diagnosis
@BeyondtheDx
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Beyond the Diagnosis unites art and science to raise awareness for children living with life-altering diseases.
Joined December 2011
We are so excited to be able to raise awareness of rare diseases through our BTD art exhibit. So very proud of my EDS warrior for getting a perfect score on her SAT.Disability does not mean inability. #EDS #RareDisease
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November is Menkes Awareness Syndrome Month! Meet Colin, lovingly painted by Law Blank. Every Child is a Masterpiece! #menkes #rarediseases
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Meet the newest member of our family, Brielle, whose portrait was unveiled at Children's Minnesota. Brielle has Beck-Fahner syndrome and was lovingly painted by Robert Francis Whelan. #rarediseases
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October 22nd is Phelan-McDermid Syndrome Awareness Day!
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We are so excited Beyond the Diagnosis is featured in the Autumn issue of @RareRevolutionM. Check it out!!
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September is Leukodystrophy Awareness Month!! Max - Artist: Jennifer Polnaszek Madeline - Artist: Kimberly Cusack Sam - Artist: Lucas Kolasa Dylan - Artist: Graham Tierney #leukodystrophy #rarediseases #portraitart
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September 7th is World Duchenne Awareness Day. Meet Austin & Max, loving painted by Dan Lake. #duchenne #rarediseases #portraitart
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September is Tay-Sachs Awareness Month. Meet Cora, lovingly painted by Lori Jeremiah. Cora lost her battle to Tay-Sachs in May of 2017. Cora was born into a loving family and is remembered for her bubbly and sweet personality. #taysachs #rarediseases
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Beyond the Diagnosis is honored to represent 150 rare diseases and counting. Thank you for your support and for joining us in our journey to make a difference, one portrait at a time. #rarediseases
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Grateful to @RareDisease_Adv for their coverage of Beyond the Diagnosis!! Love our Yiannis!!
Patient advocacy groups have long sought to raise awareness by putting faces to any number of rare diseases unknown to most people. @BeyondtheDx takes that challenge quite literally. Read more here: #RareDisease #Zebra
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The following rare diseases have awareness days in July: Craniometaphyseal Dysplasia, CTNNB1 Syndrome, Jansen Type Metaphyseal Chondrodysplsia, Rubinstein - Taybi Syndrome & Multiple Sulfatase Deficiency #rarediseases #rarediseaseawareness
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Did you know June is Apert Syndrome awareness month? Meet Giuliana painted by Vivian McNeeley #rarediseases #rarediseaseawareness #apertsyndrome
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June 11th is KBG Syndrome Awareness Day! Meet Glenn, painted by Robert Hurst. Sound on! #rarediseases #kbgsyndrome
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May is Sturge-Weber Awareness Month. Meet Ashlyn, painted by Wolfgang Widmoser. Sound on! #rarediseases #rarediseaseawareness #portraitart
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May 23rd is International GM1 Gangliosidosis Awareness Day! Meet Iris, painted by Zohra Amarta! #GM1day #GM1 #raredisease
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May 15th marks the observance of three rare disease awareness days!
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