My texting is broken 💔😭 if you need me, signal, email or call... After tens of thousands of texting messages for my campaign.... My phone says done! At least it waited until I was done campaigning.
#BarbyIngle
Today we donated our car to
@Kars4kids
The driver came to pick it up & was shocked the vehicle work & had no major damage, malfunctions & runs good. He said that was not usual for his pickups. We are glad to help and know it's going to a good cause.
#teamPulte
@pulte
#donation
My father-in-law's headstone is in at Arlington National Cemetery. So we got a few pictures at his and my mons grave sites today.
#Nervember
#LionsNotSheep
Hey all, its
@KenRayTaylor
from Barby's account. She has been doing really bad health wise. She was just dx w pneumonia. She could use some strong prayers this week. Will update on Thursday. Its
#NERVEmber
so please keep sharing & raising awareness
#RSD
#CompromisedImmineSystem
Update: Barby has not seen any improvement yet. She is using an oxygen machine & multiple meds including 2 antibiotics. Her temps r fluctuating 96-102. She coughs everytime she tries 2 speak. We just got back from more chest xrays & waiting to hear next steps Pls continue prayers
Just got back from doctor, he started Barby on steroids for the next 5 days & will keep her on 10 more days of antibiotics and on oxygen a few more days."she not out of the woods yet' per doc, but doing better than last week.
#NERVEmber
#CheerleaderofHOPE
Time to celebrate a win! The
#Arizona
#ChronicPain
Community came together at the House Health Committee along w
#SenatorBarto
4
#SB1162
& got a unanimous vote. Next full House vote. So proud of everyone who is continuing to work to make this happen for us here in AZ!
#OurPain
@pulte
Hey
@Pulte
- Thanks for all you do to make a difference! Not just with funds (very helpful) but also giving us hope, help, resources and team!
#Teamate
, Barby Rare is Hope, Hope is True!
The side I don't show too often. I like my pretty pictures better, but this side is important to share. When you are ready to give up, remember why you started.
#chronicpain
#GenerationP
#cheerleaderofhope
I get to go home tonight... in a few hours still have 3 iv's going to finish. But they got me all I need to do care from home set up, and I passed all the test needed so will get sprung sometime tonight and back to home care.
Thank you to Representative
@DrPaulGosar
& Will for taking so much time w
@KenRayTaylor
& myself today. We look forward to working w you to make positive productive changes to healthcare, especially for the rare & chronic communities n Arizona & across the USA!
#RareAcrossAmerica
Time to celebrate a win! The
#Arizona
#ChronicPain
Community came together at the House Health Committee along w
#SenatorBarto
4
#SB1162
& got a unanimous vote. Next full House vote. So proud of everyone who is continuing to work to make this happen for us here in AZ!
#OurPain
CELEBRATE Arizona Chronic Pain Community - Let’s Celebrate! We all made a difference in the lives of those with chronic pain in Arizona. Thank you to all who helped with the passing of Arizona
#SB1162
– 2022. -
#AZLeg
#OurPain
#ChronicPain
@Caspienne9
I remind myself when I am sad, anxious and/or depressed; who would not be affected mentally at the loss that comes with living with chronic pain, nerve pain damage, etc.
#NERVEmber
#MentalHealth
#GoOrange
Frank
@SarcoidosisofLI
, a Sarcoidosis Patient and Advocate, is a published author: Autobiography"Walking in Silent Pain" and "I Have Sarcoidosis but it Doesn't Have Me." He worked with a group of Sarcoidosis doctors, researchers and patients to have a journal published by NIH.
What a morning! Thanks
#hitmc
for choosing me as the 2020 Patient Advocate of the Year. Thanks
@Medigy1
for sponsoring the awards this year. Thanks Ken, Jodi & family for your support! Thanks Nicole
#GOTEAM
for changing my life. Thanks all advocates that make a difference daily!
A
#JadannyBB
legend,
@cherish_x0x0
suffers from chronic pain and is going through the stages/progression of liver disease. She has anxiety and depression because of it and wanted to spread awareness and support everyone and have fun.
Carrie
@globetrotteri
is a Patient Leader living in Taiwan with Spondylitis, Fibromyalgia, and MECFS. Blogging about her health journey since 2009, her mission is to educate, and inspire chronically ill patients around the world, while also providing resources to patients in Asia
Mia
@MyBrainStormz
serves as Activist + Advocate, enduring intractable pain resulting from a TBI. She created Holistic Health Practice & Self Help Network that has revolutionized healing + is the author of
#AGuideToReclaimYourMind
Proud to be a candidate for Arizona State Representative LD7. I believe in the Republic of the United States and Arizonans. When elected I pledge to hear my constituents and be responsible to them for my actions as a representative. I believe in freedom, liberty, equal justice,
Sat update: This is Barby's best day since Pneumonia started last Sat. She is still on oxygen & multiple meds, but is able to make it to the bathroom on her own. She has a ways to go, but I saw her smile today & as long as she doesn't talk or deep breathe she's not coughing - Ken
@Caspienne9
For me the symptoms and pain came first then the depression, sadness, anxiety... but it is different for different people for sure.
#NERVEmber
Update: Thank you for all the prayers & support, I am still gonna have a ways to go w the
#ValleyFever
, breathing treatments & meds helping, got blood sugar, potassium & magnesium levels back to normal range. I am home resting, waiting on blood testing results and liver cultures.
@NicoleArbour
We (my family) celebrate, share, remember and pray for those military members who are no longer on earth, but while here on earth gave their efforts, time, and life for our country, including my mom and dad.
Litrice
@Triciejay
is Podcaster, Mom of 2, and Everybody’s dream F2. She said she’d never play and org again but had to because of the great cause. Her mom had diabetes which led to her kidney disease. Mom didn’t make it, but she hope this sheds light on debilitating illnesses.
"For me, winning this award is all about positive attitude, ability to learn from failure and my relationships with those around me in health information technology working on marketing & communications projects." - Barby Ingle, 2020 Medigy
#HITMC
Patient Advocate of the Year
I am so honored to be listed as 1 of the 10 Healthcare Influencers that every marketers must follow in 2020 by
@MedicoReach
I will do my best to live up to this honor.
#CheerleaderofHOPE
#Thankful
Ashley
@davonnesdynasty
22 and from Texas! She is currently in her last semester of college studying actuary science. She was recently diagnosed with celiac after getting bloodwork done, because she constantly felt sick. She is excited to play this game and meet the others!
Our sun today. It doesn't even look real. AZ and CA, its said to be because of smoke and fires. It is so odd. Never seen a sun like this before.
#BloodRedSun
For those who dont know, I have RSD also known as Central Pain Syndrome & 20+ other names. You can learn more here - This is why I participate in
#NERVEmber
and help others learn about
#RareDiseases
and Pain conditions.
#GoOrange
to make a difference w me!
My medical story keeps taking turns I never see coming. So lost this evening. More to learn, more to share, seeds to plant, fruit to grow.... I will find a way. Hope is True, Prayers appreciated. BARBY
#WhenICallMyselfDisabled
its because I do not know when I will be able 2 physically attend an event or have to leave early due to lights, noise, fatigue, having a seizure, a pain flare that no 1 can see but levels me, having an asthma attack from walking or smoke... I could go on
Paralympic champion Marieke Vervoort dies by euthanasia. The pain of living with CRPS/RSD was too much! We must find ways to make a difference in access to care worldwide for
#RareDiseases
-
#NERVEmber
#GoOrange
Being a 3x winner of the WEGO Health Awards has been an honor.
WEGO Ms. Congeniality 2012, WEGO Lifetime Achievement 2016, WEGO Best Team Performance 2016
#WEGOHealthAwards
“It is always nice to be recognized for sharing my story, helping create tools & resources for others