Autism MQ
@AutismMq
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An interdisciplinary group of researchers at Macquarie University interested in improving the lives of Autistic people & those who support them.
Sydney, Australia
Joined December 2021
Thank you, Laura! We hoped our letter would open up discussions with qual autism researchers about how we ensure trust in our research. We make some suggestions but would love to hear your thoughts, too!
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RT @liz_pellicano: Just back from a brilliant @AutismINSAR. Excellent to see such a fabulous range of papers and posters focusing on Autist…
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RT @AmazeAutismAU: Amaze warmly welcomes the South Australian government’s decision to appoint Dr Emma Goodall, as the inaugural director o…
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RT @dianawtan22 and their new perspective piece on Early Career Researchers changing fields and innovating within #autism research
📢NEW PAPER: In this Perspective, I challenged several recent claims made re: ECRs changing research directions due to the public scrutiny; often described with an ominous undertone. 1/
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If you don’t know what your research is for is it relevant? If it doesn’t help the people who the research is for is it relevant? We are of equal value & entitled to equal services but can’t get that support if people don’t understand us @autismage @ITAKOM_CONF #ITAKOM #itakom23
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@autismage ‘s bucket list more research on the ageing autistic brain including sleep, intersection between burnout and brain fog, alternative therapies/efficacy of antidepressants, effects of mental health on performing daily tasks @ITAKOM_CONF #ITAKOM #itakom23
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There’s lots of research that talks about getting us into work but not about getting us out of it (into retirement) we’re often treated as a ‘homogenous lump’ when we get older when we have different needs @autismage @ITAKOM_CONF #ITAKOM #itakom23
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@autismage questioning why more #autismresearch differentiate between genders, with or without learning disabilities, different ages, how other conditions impact on cognitive health, social and family circumstances @autismage @ITAKOM_CONF #ITAKOM #itakom23
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If you stop scaring parents they might not be so scared when they find out they have an #autistic child? @autismage @ITAKOM_CONF #ITAKOM #itakom23
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Sometimes when our voices are heard… their cherry picked. We can read what is said about us. (Paraphrased) @autismage @ITAKOM_CONF #ITAKOM #itakom23
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We need to flip the gate keeping model for support - a lot of what people need is pretty standard it feels pointless putting resources into working out people need the same ordinarily available adjustments over and over @NancyDoylePsych @ITAKOM_CONF #ITAKOM23 #itakom
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Neurodiversity and disability are Venn diagram with quite a bit overlap. It’s not about which conditions get a pass this week & which ones don’t -have flexibility built into the system regardless of diagnosis or if it’s disclosed @NancyDoylePsych @ITAKOM_CONF #ITAKOM23 #itakom
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When you get your diagnosis it doesn’t come with a manual of what you’ll find easy and what you’ll find hard. People want to be heard not helped. @NancyDoylePsych @ITAKOM_CONF #ITAKOM23 #itakom
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We have a business etiquette policy - all the weird things about work that no one tells you but people expect. This needs to be part of onboarding @NancyDoylePsych @ITAKOM_CONF #ITAKOM23 #itakom
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How do you I support you work at your best? Managing by output not input and what piece of paper people have @NancyDoylePsych @ITAKOM_CONF #ITAKOM23 #itakom
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Looking at the spiky profiles of your whole team will help predict needs and recruitment priorities to strengthen your team @NancyDoylePsych @ITAKOM_CONF #ITAKOM23 #itakom
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We will personalise work by giving people access to understand their own spiky profiles and supports and accomodations for areas they’re weaker in @NancyDoylePsych @ITAKOM_CONF #ITAKOM23 #itakom
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