Ataxia Centre - UCL Institute of Neurology
@AtaxiaCentreUCL
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Our centre brings together specialists researchers and clinical academics for basic & translational research in all forms of ataxia, and best clinical practice.
Queen Square, London WC1N 3BG
Joined July 2019
The Head of our centre Prof Paola Giunti has won the Impactful #Partnership with Industry #award at UCL's Creating Impact Through Knowledge Exchange Awards 2025! Congratulations!! @giunti_paola @CureFA_org @NAF_Ataxia @AtaxiaUK @UCLIoN @UCLBrainScience
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Thank you for sharing these videos! We are very pleased to make these resources available to patients living with #ataxia We really hope that #patients will find them useful. These videos are stored on our website here: @BrainAppeal @NAF_Ataxia @UCLIoN
Really excellent videos on 'Managing Ataxia' developed by Genny Hart & Suzanne Booth at the Queen Square Ataxia service, available on the links below @ACPIN_UK @AtaxiaUK @uclh @NeurorehabUCLP @cnmdrehab
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With generous support via the @BrainAppeal Small Acorns Fund, Genny Hart (specialist physiotherapist) and Suzanne Booth (ataxia clinical nurse specialist) have developed two exercise videos for people with #ataxia Here are the videos: @NAF_Ataxia
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Paola Giunti took part in discussion with other experts on #RareDiseases to produce the latest report on effective #treatments for rare disease #patients published by Public Policy Projects @Policy_Projects @giunti_paola
#ClinicalTrials #healthinnovation
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Prof Paola Giunti @giunti_paola presented the results of #VOT #valueoftreatment project to the @Euroataxia meeting. She talked about the model of #treatment and #care of #ataxia specialist centres with personalised, coordinated care for #patients , #research studies. @EU_Brain
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RT @JulieGarra: Some highlights #ICAR2024 as we come to an end of this very successful meeting! 600+ participants, over 470 posters, many…
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RT @JulieGarra: For the last day at #ICAR2024 Dr Suran presented his #research on #telomeres length in #Friedreich's #ataxia as part of a s…
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RT @JulieGarra: We had a great evening at #ICAR2024 conference diner! Our colleague Suran @trickyDNA brought his proper camera so we have g…
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RT @LisaBunnPT: Enjoying hearing about Sarah Milne’s exercise RCT for ataxia at #ICAR2024 @AtaxiaUK @AtaxiaCentreUCL @ataxia_global @NAF_At…
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RT @JulieGarra: Interesting wprkshop session on digital and fluid #biomarkers for #ataxia #clinicaltrials at #ICAR2024 Prof Paola Giunti p…
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Our colleague Dr Rosella Abeti presented her #research work at #ICAR2024 on #mitochondrial metabolism in #DRPLA #ataxia @CureDrpla @AtaxiaUK She also had a poster with our collaborator Prof Richard Festenstein #friedreich #ataxia #biomarkers
@giunti_paola @icar_ataxia @UCLIoN
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RT @JulieGarra: We are back at #ICAR2024 for day 2. Session on #Biomarkers and #Clinical outcome measures with Dr Hector Garcia Moreno @He…
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Our #ataxia #research work is well presented at #ICAR2024 with posters and talks. First poster session yesterday was busy for our team! @HecGarciaMoreno @giunti_paola @trickyDNA @shpresa81449145 Looking forward to today's talks and poster session! @icar_ataxia @UCLIoN
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Our clinician researcher Hector Garcia Moreno @HecGarciaMoreno has brought many posters at #ICAR2024 on xeroderma pigmentosa and various SCAs including #SCA3 He has a flash talk today at 3PM in the session on #biomarkers and #clinical outcome measures @UCLIoN @giunti_paola
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It was great to meet you in person Tomazos! Looking forward to future opportunities to collaborate again. @giunti_paola
Catching up with collaborators and networking at the poster session #ICAR2024 #ataxia #research Great atmosphere yesterday at the conference with plenty of exciting research being presented! Looking forward to day 2!! @icar_ataxia @UCLIoN @PTCTherapeutics
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It was great to speak with you @larimarthrx @giunti_paola
Busy posters session yesterday at #ICAR2024 presenting #VoT project on #patients #care pathways and #cost associated in #EU countries: specialist #ataxia centre with better #outcomes at similar cost compared with non specialist services! @AtaxiaUK @UCLIoN @EU_Brain @Euroataxia
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RT @JulieGarra: Catching up with collaborators and networking at the poster session #ICAR2024 #ataxia #research Great atmosphere yesterda…
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RT @JulieGarra: Time for debate at #ICAR2024 about the use of #cellular models instead of #animal models for development of new #treatments…
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RT @JulieGarra: Here we start the new edition of International Congress for #Ataxia #Research #icar2024 in London! I remember the edition…
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RT @JulieGarra: Looking forward to present my posters later today at #ICAR2024 on #ValueofTreatment project talking about #ataxia #patients…
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