If you are a disabled resident do not buy or rent a home from @Clarion_Group. I'm homeless because they won't deal with a malfunction in the plant room which makes my entire flat vibrate, rendering it uninhabitable. It's been 3 weeks. I'm desperate #DisabilityRights #disabled

@Clarion_Group You might kill me but I won't go quietly

@DiaryofaSickGrl my symptoms are worse in any extreme temperature but easier to manage when it's cold. Doctors are always surprised when I say that summer exacerbates my symptoms more than winter. But I find it easier to warm up than cool down. or, rather, easier to STAY warm than to stay cool

Hey @TfL please could you pass on my thanks to Steve who was working at Chiswick Park last night. He was very kind to me and helped me find an alternative route when the district line was suspended and I was struggling with pain in my feet after recent hospital treatment. Lex

2 days post #Qutenza #capcaisin patch and I've gone through a whole tube of #DeepFreeze 🔥

@docsimsim @tenacious_mumma It was at St georges hospital through my neurologist at the time, dr al-memar. I can't get it west london its not approved for small fibre neuropathy, different NHS trusts 😕

@tenacious_mumma It was incredible. But I moved to a different area and I can no longer have it, the NHS Trust doesn't approve it for sfn. I would do anything to get back on it. I wish I hadn't moved 😕

@thesaltiestcow thanks so much! same to you re SFN questions! I've had it for nearly 6 years. I used to post about it a lot but not much recently, typing is really difficult because my fingertips are numb. hoping qutenza wil help even if it's only a little bit

@thesaltiestcow sorry i just saw your other post said 1 hour!