Thank you
@LordMayorLeeds
for hosting the really lovely, poignant Memorial Service for Rob Burrow today at the Civic Hall Leeds.
@LeedsHospitals
@leedsrhinos
@LDShospcharity
Much to reflect on “Love is a Verb” by Jamie Jones-Buchanan struck a chord
Rob Burrow Living with MND
@BBCTwo
a documentary laying bare the realities of
#livingwithMND
I can only say today what I said to Rob when I first met him ‘it is an honour to look after you
@Rob7Burrow
’ Thank you to the entire Burrow Family and the BBC crew making this amazing doc
Rob and I had discussed that the story of The rugby legend and his Indian neurologist would surely positively impact race relations🌺To all those with anger within, irrespective of colour/ religion etc: just take a deep breath, go home to your loved ones..life is too short…🧡
Amazing teams from sport and science coming together for a common goal - creating the bespoke,most beautiful, serene,with the times “The
@Rob7Burrow
Centre for
#MND
”
@LeedsHospitals
. It will be a place where art sports and science will merge for best patient care
It takes immense courage to open up your life at the best of timeS. One needs to be in an exceptional place of strength to do so when one is
#LivingwithMND
Thank you
@Rob7Burrow
for changing the narrative around
#MND
- of showing the world the harsh brutal truth of this disease.
'It doesn't just affect the individual but the whole family'
Rob & Lindsey Burrow told
#BBCBreakfast
why they allowed the BBC to film the intimate documentary 'Rob Burrow: Living With MND'
@BBCTwo
and
@BBCiPlayer
Kevin Sinfield made me a promise “I will throw my weight behind you Agam as will every Rhinos fan” to build The
@Rob7Burrow
Centre for MND
@LeedsHospitals
. He has stayed true to his word. Please do watch Kevin Sinfield :Going The extra Mile - BBC Two and i player tonight at 7 pm
Kevin Sinfield has raised millions of pounds for MND. People living with the disease tell
#BBCBreakfast
, they can’t thank him enough for the awareness he has brought to the condition.
Kevin Sinfield: Going the Extra Mile - BBC Two and iPlayer on Friday at 7pm ⬇️
Wonderful to see
@KensingtonRoyal
recognising the courage and resilience shown by
@Rob7Burrow
and Kevin Sinfield in changing the entire conversation on
#MND
…. Particularly touched by the special gesture of handing over the CBE’s by HRH The Prince of Wales at Headingley Stadium
A pleasure to award Rob Burrow and Kevin Sinfield with their CBEs at Headingley today. Thank you both for your incredible efforts in raising awareness and funds for Motor Neurone Disease. Both true heroes of the
#MND
community and the Rugby Football League.
Running a marathon .. whilst being a mother, a wife, a carer, an NHS Key worker … being a rock … finding that strength within to keep going ! So much to learn from Lindsey and
@Rob7Burrow
.. well done Lindsey .. so very proud of you !!
🎉£100,000! 🎉
Our patron Lindsey Burrow has passed the £100k fundraising milestone thanks to her heroic efforts at the
#RobBurrowLeedsMarathon
!🏃♀️🤩
We can't thank Lindsey enough for helping us make the
@Rob7Burrow
centre for
#MND
a reality. 💜
Donate 👇
This brought a big smile to my face! Fab start to the day ! The story Tilda Tries Again read by Rob Burrow is spot on. Thank you
@CBeebiesHQ
… so many people will draw strength from this reading ..
@Rob7Burrow
smashing barriers every day !!
@LDShospcharity
@leedsrhinos
“It brought back so many memories of me reading to my own children”
The former Leeds Rhinos player Rob Burrow is the latest celebrity to take part in the CBeebies Bedtime Story 🌙📘
He chose a book all about resilience and determination ⬇️
Thank you
#Kevin
Sinfield for again raising funds for the
@Rob7Burrow
centre for
#MND
by your Ultra 7 in 7 Challenge covering nearly 40 miles per day for 7 days before finishing at Old Trafford at half time in the mens
@rlwc2021
Final
#Ultra7in7
@LDShospcharity
#KevinSinfield
“I will throw my weight behind you Agam, as will every Rhinos fan” when I first spoke of the idea of ‘The
@Rob7Burrow
Centre for
#MND
@LeedsHospitals
’ ..Staying true to his promise Kev has galvanised a nation ‘Our country cares’. Heartfelt gratitude
#ultra7in7
‘Our country cares’
At the end of Kevin Sinfield’s
#ultra7in7
he’s raised more than £1.5m for
#MND
A hero for modern times recognised at the Rugby League World Cup final
On Diwali one would gift sweets to friends and family wishing them prosperity,happiness and light in their lives. For my
#MND
patients, the best gift would be to have ‘The
@Rob7Burrow
Centre for MND
@LeedsHospitals
’ Thank you to those who gifted via
Absolutely inspirational interview by Lindsey Burrow .. we must indeed live life to the fullest every day .. with happiness and humour, love and laughter !
@Rob7Burrow
@LeedsNews
Amazing news making me smile ear to ear! Congratulations Kev! I will never forget your words “I will throw my weight behind you Agam” when we first spoke about ‘The
@Rob7Burrow
Centre for
#MND
’
@LeedsHospitals
Thank you Kev for all that you do!
@leedsrhinos
@LDShospcharity
Absolutely fantastic news !!
@Rob7Burrow
has changed the narrative on
#MND
and along with Kevin and Co the awareness raised has brought much needed funds for the wonderful
@Rob7Burrow
Centre for MND
@LeedsHospitals
and for MND research nationally. 🧡💪
Rugby League legends Rob Burrow and Kevin Sinfield have been awarded CBEs in the New Year Honours.
They told
#BBCBreakfast
that it's more recognition for everyone living with MND
From March 2020 when I first conceptualised the idea of ‘The
@Rob7Burrow
Centre for
#MND
’
@LeedsHospitals
to March 2022 when I share the concept designs publicly has been an amazing journey. It is also a very emotional moment to see the dream on paper.
Amazing atmosphere at Headingley Stadium
@leedsrhinos
for Rob’s Tribute …and many of my patients have made the journey.
@LDShospcharity
fundraising for The Rob Burrow Centre for MND
@LeedsHospitals
Thank you for your support again
Have only now managed to hear Kevin Sinfield on today’s
@BBCBreakfast
speaking about “The
@Rob7Burrow
Centre for
#MND
”
@LeedsHospitals
.. thank you Kevin for your commitment. Will never forget our conversation when we first discussed this..
Incredible scenes today at Headingley Stadium today honouring Rob Burrow … 17000 people and not a dry eye …beautiful and fitting song “I did it my way”…. thank you Rob 🧡…
Exceptionally proud of Lindsey Burrow 🧡. Some Fabulous Fundraising !! Thank you to 🌺 all the wonderful generous kind people getting behind the vision of The
@Rob7Burrow
Centre for
#MND
@LeedsHospitals
via The
#LeedsMarathon
🏃🏻♂️🏃🏾♀️
#ITVTonight
follows Lindsey Burrow as she fits in marathon training with working and family life, whilst exploring the wider impact of the debilitating and terminal disease, MND.
Watch Lindsey & Rob: Living With MND, on ITV1 and ITVX at 8:30pm, Thursday 8th June
Thank you
@ITVTonight
for a beautiful uplifting documentary … the
@Rob7Burrow
Centre for
#MND
. Time has flown since March 2020 when I first proposed the concept - looking forward to making the most beautiful sanctuary for my patients
#MND
Please donate
#ITVTonight
follows Lindsey Burrow as she fits in marathon training with working and family life, whilst exploring the wider impact of the debilitating and terminal disease, MND.
Watch Lindsey & Rob: Living With MND, on ITV1 and ITVX at 8:30pm, Thursday 8th June
'These carers are basically keeping the country going, it can be quite a lonely and dark place at times'
Lindsey Burrow, whose husband Rob is living with MND, told
#BBCBreakfast
about her plans for a book highlighting the role of unpaid carers called 'Take Care: A Memoir of
From having the concept idea of The
@Rob7Burrow
Centre for
#MND
@LeedsHospitals
in March 2020, to going public in September 2021 to now when we cross the £2 million mark with another £3 million to go has been amazing. Do join me in this beautiful journey
Kevin Sinfield’s words to me back in 2020 “I will throw my weight behind you Agam for the
@Rob7Burrow
Centre for
#MND
@LeedsHospitals
”
Very grateful for Kev’s phenomenal support in providing excellent care in excellent environs.
Thank you Kev for all that you continue to do 🧡🙏
A market with a conscience - North East India never ceases to amaze me with its discipline - essential food items . No one goes hungry in Manipur
@NBirenSingh
@DrJitendraSingh
@narendramodi
Kevin Sinfield has raised millions of pounds for MND. People living with the disease tell
#BBCBreakfast
, they can’t thank him enough for the awareness he has brought to the condition.
Kevin Sinfield: Going the Extra Mile - BBC Two and iPlayer on Friday at 7pm ⬇️
10 years ago, On a late Thursday afternoon
@LeedsHospitals
Seacroft Hospital I drew the Leeds MND Care Delivery Model on a scrap of paper with a fantastic illustrator - my vision for providing excellent care with the patient at the heart of it, helping patients ‘Live in the Now’
… happy bright day
@LeedsHospitals
… Work on The Rob Burrow Centre for
#MND
going at full speed
@LDShospcharity
. Big shout out to everybody who has put their heart and soul in the and to all the fundraisers🧡
Thank you
@donaldgmcrae
for the beautiful sensitive portrayal- very inspiring.Thank you
@Rob7Burrow
for changing the narrative around MND. Proud of my Leeds MND Team - supporting patients to ‘Live in the holy Now’
@LeedsHospitals
Happy faces all around
@Burrow_strictly
.. so much fun, laughter, cheering, dancing and total happiness! Thank you everybody for making this fabulous evening fundraising for The
@Rob7Burrow
Centre for
#MND
a huge success. Much love 🥰
A week ago,I addressed a 400 strong gathering
@Burrow_strictly
sharing the beginning and the journey so far of building this beautiful safe haven:The
@Rob7Burrow
Centre for
#MND
@LeedsHospitals
- a story of love & kindness,Hope & belief.Thanks to so many people for their support.
#KevinSinfield
#Ultra7in7
raising awareness and much needed funds for
#MND
…we are another step closer to building the
@Rob7Burrow
Centre for MND
@LeedsHospitals
Thank you Kevin and all those supporting you! Sending you all my good wishes and positive thoughts for this challenge
Wonderful to see the speed with which all the work is going on in building the most beautiful “The Rob Burrow Centre for
#MND
”
@LeedsHospitals
…
My MND Team has mega expanded to include builders, concrete experts and many many more !!
Superb interview
@sallynugent
@BBCBreakfast
The Leeds MND Service is the only one in the world to have sportspeople, media fraternity and pretty much the entire country in its team !! Thank you all of you for supporting The
@Rob7Burrow
Centre for
#MND
@LeedsHospitals
!!
'Surely Sir Kev is coming'
Rugby League legend Kevin Sinfield spoke to
#BBCBreakfast
after raising more than £1.8m for MND charities by running 7 ultra marathons in 7 days - as well as THAT unexpected moment caught on camera!
A fantastic end of year stakeholder meeting for the
@Rob7Burrow
Centre for
#MND
@LeedsHospitals
… an excellent amalgamation of ideas after meetings with patients, their families, admin teams, receptionists, the mnd team - very fulfilling and happy day indeed
The nightmare of 2020 goes on for us Indian origin medics in the U.K. Heartbreaking messages from desperate family & friends back in India.Being an immigrant is tough, being a medic and unable to help loved ones, particularly parents is simply awful.
@KailashChandOBE
@jsbamrah
Excellent news that “Rob Burrow - Living with MND” is shortlisted for the Broadcast Sport Awards. Rob’s immense courage in revealing some of the most difficult conversations that take place in my clinic is absolutely inspirational.This documentary deserves every award possible 🌸
Chuffed to see ‘Rob Burrow: Living with MND’ making the shortlist for the Broadcast Sport Awards.
Some brilliant documentaries on important subjects
#BSportAwards23
@broadcast_sport
My fabulous
#MND
team
@LeedsHospitals
making me feel very special today … touched by all of them wishing me a joyful Diwali with many Sweets, traditional Indian ones from restaurant included ! , a beautiful Diwali card and a candle for me to light on Diwali evening 🙏🧡🧡🌺
@beckybeckyfish
There is indeed a lot of reverse learning now. On my COVID ward days I am guided by my FY2... there is a lot of positivity and love and happiness being shared too and yes .. the specialities are irrelevant now - the responsibility remains with the consultants ofcourse
Thank you
@LdsIrishCentre
for taking us yet another step closer to The
@Rob7Burrow
Centre for MND
@LeedsHospitals
. In this journey of developing the centre I get the opportunity everyday to practise gratitude. Totally amazed by unknown faceless people taking the vision forward.
Wow! Kevin Sinfield’s fundraising for the
#7in7in7
Challenge has gone through the £1️⃣,0️⃣0️⃣0️⃣,0️⃣0️⃣0️⃣ barrier, thank you for your incredible generosity
A very happy morning with
@CWrightarch
@LDShospcharity
seeing architect designs for The
@Rob7Burrow
Centre for
#MND
@LeedsHospitals
. The palpable excitement of my amazing patients and their families, the super efficient TrustComms ..am very happy at reaching this milestone 🧡😊
Rob Burrow : Living with MND unfolds many delicate moments .. including some very sensitive medical discussions .. the courage to be able to show that is phenomenal and I would urge all to see the documentary and vote for it
@RCPhysicians
@ABNTrainees
Our documentary Rob Burrow: Living With MND’ has made it into the long list of the National TV Awards. We’d be very grateful if you could take two minutes to vote for it via the link. Thank you.
A year ago we launched the
@Rob7Burrow
Centre for
#MND
@LeedsHospitals
appeal to ensure my patients are looked after in a bespoke peaceful environment supporting them to “live in the now” - raising more than £2 milllion in a year is quite an achievement
@pjsouthall
Our family portrait … don’t think I will ever be able to erase the memory of the dining table chat .. we said our goodbyes to each other hoping we would all make it through ..
Thank you for your lovely words …this actually brought tears after a long day at work.
I don’t think I will ever really be able to express the impact my patients with
#MND
leave on me 🌺.
Living in the Now with love and compassion is the only way to be🧡
Dr Agam Jung, Consultant Neurologist at
@LeedsHospitals
has been a consistent support in Rob's life since his diagnosis of MND in 2022 💜
Rob's story is the second episode of our 'Voices of MND' series.
Watch the full video now 🔽
@leedshospitals
All the hard work coming to fruition .. so very proud today !🧡….Big Thank you to everyone for supporting this dream 🙏. First look at concept designs of Rob Burrow Centre for Motor Neurone Disease
Wonderful to have my consultant neurology colleagues Dr Mark Lewis, Dr Marc Randall , my team, members of the public and my patients all coming out to support Kevin Sinfield in his
#7in7in7
challenge
Moment of pride for me to have reached a point where architects have been appointed, plans going forward to build The
@Rob7Burrow
Centre for
#MND
@LeedsHospitals
. Do keep abreast the latest news via the
@LDShospcharity
blog 👇… there is a little bit of everyone in this centre🧡
In our newest Rob Burrow Centre for MND blog, we hear from Toby Ingle, Associate Director at
@CWrightarch
.
Toby talks about ‘going beyond the brief’ by working with staff, patients, and other stakeholders to co-design the building.
Finally watched
@DrAmirKhanGP
on Gardner’s world speaking on mental health and gardens. The eternal nature of nature helps us deal with stress and this is the main reason why The
@Rob7Burrow
Centre for
#MND
@LeedsHospitals
concept designs have indoor and outdoor garden spaces.
If you missed Gardeners World yesterday, it’s available on catch up
I shared my passion for wildlife gardening and discussed the importance of access to green spaces for everyone no matter what their background
The superhero who inspires us all to do our best in everything we do. Can’t wait to see The
@Rob7Burrow
Centre for
#MND
@LeedsHospitals
. Please support this flagship centre at the heart of which will be love and friendship
#TheExtraMile
A big shout out to all those who have supported us in raising funds for The
@Rob7Burrow
Centre for
#MND
@LeedsHospitals
We must ensure that all our patients have the best Quality of Life
#LivingInTheNow
(Leeds MND service ethos) - very Proud to lead my fantastic team !
'It is the best picture I have ever seen'
Rugby League legend Rob Burrow and his family spoke to
#BBCBreakfast
about their delight that Oscar winner Charlie Mackesy is raising funds for MND with his picture of Rob and his friend Kevin Sinfield
Very important milestone today - getting feedback from The Burrow family for the
@rob7burrow
#MND
Centre
@LeedsHospitals
…happy with the pace with which it has moved since my idea in March 2020... too many people to thank 🙏 for this - my patients and my team 🧡