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Epilepsy Action Australia Profile
Epilepsy Action Australia

@Action4Epilepsy

Followers
2K
Following
360
Statuses
8K

Advocates for those living with epilepsy, providing impactful services nationwide πŸ’œ

Australia
Joined March 2009
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@Action4Epilepsy
Epilepsy Action Australia
7 months
@AEP_platform Thank you for highlighting our work! Your support helps us continue making a difference. 🌟
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@Action4Epilepsy
Epilepsy Action Australia
11 months
Join our Youth Conference in Wagga Wagga, April 27-28, 2024. Connect with peers, learn self-management, and enjoy insightful sessions. No cost, thanks to the NSW Government. Email epilepsy@epilepsy.org.au or click this link: #EpilepsyYouthConference
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@Action4Epilepsy
Epilepsy Action Australia
1 year
Dive into the power of the ketogenic diet for epilepsy treatment! 🍽️πŸ’ͺ Exploring its potential alongside anti-seizure medications? Uncover the facts and practical tips for a balanced journey. 🧠✨ Click here to read more: #KetoEpilepsy #SeizureTreatment
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@Action4Epilepsy
Epilepsy Action Australia
1 year
Epilepsy, the fourth most common brain disorder, is marked by recurrent seizures and is often diagnosed in childhood or senior years. Beyond seizures, it significantly affects cognitive and emotional aspects, such as anxiety, depression, mood changes, and learning difficulties.
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@Action4Epilepsy
Epilepsy Action Australia
1 year
🌟 Exciting News! Pilot study led by Dr. Katherine A. Zarroli explores Perampanel for managing perimenstrual seizures in women with epilepsy. πŸ©ΊπŸ” Stay tuned for insights into catamenial epilepsy patterns and potential breakthroughs! #EpilepsyResearch
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@Action4Epilepsy
Epilepsy Action Australia
1 year
Todd’s paralysis is a neurological condition experienced by people with epilepsy, in which they have a brief period of temporary paralysis following a seizure. Listen to the podcast here:
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@Action4Epilepsy
Epilepsy Action Australia
1 year
πŸ—£οΈ Join the conversation on the inquiry into children and young individuals with disabilities in educational settings across NSW. Your insights matter! 🌐 πŸ‘‰ Submit your individual perspective here: #NSWDisabilityInquiry #EducationIsKey #InclusiveLearning
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@Action4Epilepsy
Epilepsy Action Australia
1 year
🧠 SCN8A: the gene behind the scenes is responsible for creating sodium channels crucial for brain signals. Changes, whether inherited or new, can lead to developmental challenges, epilepsy, and intellectual disabilities. Join us in spreading awareness on SCN8A Awareness Day.
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@Action4Epilepsy
Epilepsy Action Australia
1 year
Discover how prescribing trends have evolved, from a decrease in use of sodium valproate to the increasing use of levetiracetam. Notable improvements in seizure freedom rates and decreased serious abnormalities, offering valuable insights for the future. 🌐
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@Action4Epilepsy
Epilepsy Action Australia
1 year
🌟 Our talented Rebecca is a finalist for the @CANVA Force for Good Community Awards! πŸ† Support her creative contributions by casting your vote. Let's make a difference together! πŸ—³οΈπŸš€ Vote here: #RebeccaForCANVA #CommunityAwards #EpilepsyAwareness
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@Action4Epilepsy
Epilepsy Action Australia
1 year
Today is PACS1 Syndrome Awareness, a chance to unite, raise awareness, and strive for better treatments and a cure. πŸ’œ#PACS1Syndrome #RareDiseaseAwareness
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@Action4Epilepsy
Epilepsy Action Australia
1 year
Calling all young changemakers aged 12-25! YDAS needs your voice to co-design an online hub. Join us in shaping a platform that amplifies your rights, boosts confidence, and ensures your NDIS experience is heard and understood. Register your interest here:
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@Action4Epilepsy
Epilepsy Action Australia
1 year
Join our Youth Conference in Wagga Wagga, April 27-28, 2024. Connect with peers, learn self-management, and enjoy insightful sessions. No cost, thanks to the NSW Government. Email epilepsy@epilepsy.org.au or click this link: #EpilepsyYouthConference
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@Action4Epilepsy
Epilepsy Action Australia
1 year
If you are someone experiencing seizures or have been diagnosed with epilepsy, the @AEP_Platform is accepting registrations of interest to join their study via the website at #EpilepsyAwareness #Epilepsy #BreakTheStigma #Neuroscience
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@Action4Epilepsy
Epilepsy Action Australia
1 year
If you answered YES, you may be eligible to join @AEP_Platform & receive access to advanced testing via their #Queensland Hub at the #materhospitalbrisbane. Check your eligibility &register your interest via #EpilepsyResearch #Brisbane
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@Action4Epilepsy
Epilepsy Action Australia
1 year
RT @CydaAu: Are you the parent or caregiver of children with disability, developmental delay or neurodiversity? Whether an NDIS participan…
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@Action4Epilepsy
Epilepsy Action Australia
1 year
If you answered YES, you may be eligible to join @AEP_Platform & receive access to advanced testing via their #Newcastle Hub at the #johnhunterhospitalnewcastle Check your eligibility &register your interest via #EpilepsyResearch #HunterValley
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@Action4Epilepsy
Epilepsy Action Australia
1 year
Join us for an unforgettable night at our Purple Day Gala Dinner - 'Illuminating Hope'. Be inspired, entertained and be part of the impact. 🎫Purchase a ticket for $500 or rally your crew for a table of 10 at $5000. πŸ‘‰ Purchase your tickets here:
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@Action4Epilepsy
Epilepsy Action Australia
1 year
This 2-day #youthconference for 16-24yo helps youth with managing #epilepsy, looking after their mental health & sharing their story. Epilepsy specialist nurses will always be present. πŸ‘‰REGISTER VIA EMAIL or click here:
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@Action4Epilepsy
Epilepsy Action Australia
1 year
Not always. Seizures can also happen related to other medical problems. These problems can include - A high fever (children under 6 years), Low blood sugar, Alcohol or drug withdrawal, Concussion, Fainting. Access our preparation tips here:
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