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Sickle Cell Disease Coalition Profile
Sickle Cell Disease Coalition

@ConquerSCD

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The Sickle Cell Disease Coalition is an international alliance aiming to improve outcomes for individuals living with #sicklecell. Together, we can #ConquerSCD!

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Joined August 2017
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@ConquerSCD
Sickle Cell Disease Coalition
11 months
Want a sneak peek of the #SCD Stakeholder Database?: Make sure you fill out the survey for your organization to be included:
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@ConquerSCD
Sickle Cell Disease Coalition
12 days
RT @ASH_hematology: 🚨 No evidence links #sicklecell trait to sudden death or acute pain crises. It is medically inaccurate to claim SCT as…
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@ConquerSCD
Sickle Cell Disease Coalition
12 days
Join the Sickle Cell Adult Provider Network (SCAPN) for the 3rd Best of ASH Sickle Cell Symposium tomorrow, Jan 31st, 2 PM ET. Abstracts from #ASH_hematology 66th Annual Meeting on research & gene therapy shared! Register:
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@ConquerSCD
Sickle Cell Disease Coalition
14 days
📅 Exciting news! The SCDC Calendar has been updated for easier navigation and searchability! Stay informed and connected with all the important sickle cell events in our community. Check it out now!
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@ConquerSCD
Sickle Cell Disease Coalition
19 days
In recognition of Maternal Health Awareness Month, it's crucial to highlight that women with #SCD face increased risks during pregnancy. Access to specialized care and resources is vital for their health and their babies'. Learn more from @CDCgov:
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@ConquerSCD
Sickle Cell Disease Coalition
20 days
Check out this PSA from our SCDC Blood Donor Diversity co-chairs! Their message highlights the urgent need for blood donors to support patients, including those with #SCD. Every drop counts--#NBDM #DiversityInDonors Click here:
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@ConquerSCD
Sickle Cell Disease Coalition
21 days
@SCDAAorg is teaming up with the @RedCross #SleevesUp campaign for a virtual blood drive in support of sickle cell warriors! Join or share the campaign to make a difference by pledging to donate blood. Get involved:
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@ConquerSCD
Sickle Cell Disease Coalition
25 days
This Saturday, January 18th, celebrate with Cayenne Wellness Center as they open the doors to their new building for an in-person event supporting the #SCD and trait community. Don't miss out--register here:
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@ConquerSCD
Sickle Cell Disease Coalition
27 days
Blood Donations save lives, especially for those with rare blood diseases like sickle cell disease. @NIH_NHLBI's Dr. Julie Panepinto highlights 3 key reasons why blood donor diversity is crucial. Learn more here
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@ConquerSCD
Sickle Cell Disease Coalition
28 days
We're on a mission in 2025 to transform care for those affected by sickle cell through innovative collaboration and integration- spanning states, regions, and systems! If your organization shares our vision, we invite your to apply for membership here:
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@ConquerSCD
Sickle Cell Disease Coalition
28 days
January is National Blood Donor Month #NBDM! Have you explored @ADRPgiveblood new blood donor month website? Their promotional toolbox is packed with resources to support your efforts to encourage donors this month and beyond. Take a look here:
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@ConquerSCD
Sickle Cell Disease Coalition
1 month
RT @ASH_hematology: The 2025 #ASHCRTI is the perfect opportunity to take the next big step in your clinical research career. Develop lea…
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@ConquerSCD
Sickle Cell Disease Coalition
1 month
Today marks the start of National Blood Donor Month! *blood drop emoji* Celebrate by exploring @ADRP’s new website and discovering resources to support diverse blood donation efforts. Check it out: #NationalBloodDonorMonth #DonateBlood
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@ConquerSCD
Sickle Cell Disease Coalition
2 months
As 2024 comes to a close, the SCDC is grateful for our dedicated members and partners who drive change in #SickleCell. Together, we’re entering 2025 with a renewed purpose to improve lives and strengthen our community. Thank you for all you do! #SCD #HappyNewYear
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@ConquerSCD
Sickle Cell Disease Coalition
2 months
It's here! SCD Wrapped 2024 is ready. Take a look at this years SCDC highlights.
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@ConquerSCD
Sickle Cell Disease Coalition
2 months
As the holiday season begins, so many people may be traveling for the holidays. Explore this article by an #SCD caregiver on tips for traveling safely this season.
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@ConquerSCD
Sickle Cell Disease Coalition
2 months
CMS is seeking input from the SCD community on Measure ID MUC2024-074 (#30 on the MUC List) Information on the measures under consideration and comment submissions can be accessed until December 30, 2024. Use this link for more details.
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@ConquerSCD
Sickle Cell Disease Coalition
2 months
#ICYMI The 66th ASH Annual Meeting and Exposition wrapped up on December 10th, but you can still register to watch recordings of sessions and view posters on the Virtual Platform:
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@ConquerSCD
Sickle Cell Disease Coalition
2 months
RT @ASH_hematology: We are honored to introduce Belinda Avalos, MD (@b_avalos_MD) as the 2025 ASH President! A heartfelt thank you to Dr.…
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@ConquerSCD
Sickle Cell Disease Coalition
2 months
RT @SCCConsortium: 🚨 Attention Partners! 🚨 The rescheduled partner meeting will be this Friday, December 13th, at 7 PM EST, we will be hos…
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@ConquerSCD
Sickle Cell Disease Coalition
2 months
There's still time to join Sick Cells' 2024 Coverage for Sickle Cell Disease Summit ! A forum dedicated to exploring the evolving healthcare coverage landscape for individuals with #SCD. Register here: #HealthCoverage
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