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Sickle Cell Disease Coalition
@ConquerSCD
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The Sickle Cell Disease Coalition is an international alliance aiming to improve outcomes for individuals living with #sicklecell. Together, we can #ConquerSCD!
Global
Joined August 2017
Want a sneak peek of the #SCD Stakeholder Database?: Make sure you fill out the survey for your organization to be included:
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RT @ASH_hematology: 🚨 No evidence links #sicklecell trait to sudden death or acute pain crises. It is medically inaccurate to claim SCT as…
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Join the Sickle Cell Adult Provider Network (SCAPN) for the 3rd Best of ASH Sickle Cell Symposium tomorrow, Jan 31st, 2 PM ET. Abstracts from #ASH_hematology 66th Annual Meeting on research & gene therapy shared! Register:
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Check out this PSA from our SCDC Blood Donor Diversity co-chairs! Their message highlights the urgent need for blood donors to support patients, including those with #SCD. Every drop counts--#NBDM #DiversityInDonors Click here:
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@SCDAAorg is teaming up with the @RedCross #SleevesUp campaign for a virtual blood drive in support of sickle cell warriors! Join or share the campaign to make a difference by pledging to donate blood. Get involved:
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This Saturday, January 18th, celebrate with Cayenne Wellness Center as they open the doors to their new building for an in-person event supporting the #SCD and trait community. Don't miss out--register here:
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Blood Donations save lives, especially for those with rare blood diseases like sickle cell disease. @NIH_NHLBI's Dr. Julie Panepinto highlights 3 key reasons why blood donor diversity is crucial. Learn more here
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January is National Blood Donor Month #NBDM! Have you explored @ADRPgiveblood new blood donor month website? Their promotional toolbox is packed with resources to support your efforts to encourage donors this month and beyond. Take a look here:
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RT @ASH_hematology: The 2025 #ASHCRTI is the perfect opportunity to take the next big step in your clinical research career. Develop lea…
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Today marks the start of National Blood Donor Month! *blood drop emoji* Celebrate by exploring @ADRP’s new website and discovering resources to support diverse blood donation efforts. Check it out: #NationalBloodDonorMonth #DonateBlood
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As 2024 comes to a close, the SCDC is grateful for our dedicated members and partners who drive change in #SickleCell. Together, we’re entering 2025 with a renewed purpose to improve lives and strengthen our community. Thank you for all you do! #SCD #HappyNewYear
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As the holiday season begins, so many people may be traveling for the holidays. Explore this article by an #SCD caregiver on tips for traveling safely this season.
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CMS is seeking input from the SCD community on Measure ID MUC2024-074 (#30 on the MUC List) Information on the measures under consideration and comment submissions can be accessed until December 30, 2024. Use this link for more details.
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#ICYMI The 66th ASH Annual Meeting and Exposition wrapped up on December 10th, but you can still register to watch recordings of sessions and view posters on the Virtual Platform:
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RT @ASH_hematology: We are honored to introduce Belinda Avalos, MD (@b_avalos_MD) as the 2025 ASH President! A heartfelt thank you to Dr.…
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RT @SCCConsortium: 🚨 Attention Partners! 🚨 The rescheduled partner meeting will be this Friday, December 13th, at 7 PM EST, we will be hos…
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There's still time to join Sick Cells' 2024 Coverage for Sickle Cell Disease Summit ! A forum dedicated to exploring the evolving healthcare coverage landscape for individuals with #SCD. Register here: #HealthCoverage
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