🚴‍♂️ Pedal for a Purpose: London to Brighton Cycle 2025! Imagine crossing the finish line on Brighton’s iconic seafront, greeted by cheering crowds and a wave of celebration! 🎉 📩 Sign up today! Email us for a form at fundraising@ataxia.org.uk

👏 Brandhall Community Choir deserve a huge round of applause for their amazing donation of £242.82! Thank you so much. This will go a long way to support the community. #AtaxiaUK #ataxia #ThankYou #Friends #Community #Charity #TeamAtaxiaUK

On January 30th, 2025, Alterity announced positive data from their phase 2 placebo-controlled trial in early-stage MSA. Read more here:

Read more here:

Our next All About Ataxia session will be held on Tuesday 25th March from 10:00am to 14:00pm! This is your chance to share your experience with likeminded individuals and hear from healthcare professionals about how to manage the condition. Register now:

🏃‍♂️ Take on the Dorney Lake Challenge for Ataxia UK! 🚴‍♀️ 👉 Join the team now or for more information about other challenges we have on offer email us at fundraising@ataxia.org.uk. For details on the events at Dorney Lake see here:

A huge thank you to Harris Academy school community in Dundee for your very generous donation of £2746 in support of the #ataxia community! #AtaxiaUK #ataxia #ThankYou #Friends #Fundraising #Charity #Support #TeamAtaxiaUK

Read more in their press release here:

Join us tomorrow for All About Ataxia: Your Mental Health with the Services Team as they engage in meaningful conversations about our mental well-being and explore strategies for its care and maintenance. These sessions are FREE to join over Zoom:

🚨 GO CHARLOTTE! 🚨 Charlotte Huggett is taking on the Mad Dog 10K to raise vital funds for Ataxia UK, and we couldn’t be prouder! If you can, please donate via her JustGiving page:

❤️ This Valentine’s Day, Show Some Love That Lasts! Roses fade, chocolates disappear… but your support for Ataxia UK can make a lasting impact! 🌹🍫 This Valentine’s Day, why not fundraise for a cause that truly matters? Contact us at fundraising@ataxia.org.uk.

Wellbeing Week is almost here! Join us on Monday 3rd February to Friday 7th February as we offer a range of FREE sessions designed to increase your emotional and physical wellbeing. Register now:

Give it up for Maya Shukla for completing the Battersea Half. Your continued support for the ataxia community is an inspiration! #AtaxiaUK #ataxia #ThankYou #TeamAtaxiaUK

A new study is recruiting participants, which aims to understand how Friedreich’s Ataxia (FA) impacts your daily life and overall health. If you are aged 12 or over and have FA, or provide care for someone with FA, take part now:

Ready for an adventure? 🪂 Sign up for our Sky Dive Action Day on 29 March 2025 and dive in for a cure!💥 Register Now: Or email our team for a form at fundraising@ataxia.org.uk

A huge congratulations and thank you to Lucy Holland for another fantastic ‘Candlelit Yoga’ event raising an amazing £767 (inc Gift Aid) to support the ataxia community! #AtaxiaUK #ataxia #Friends #TeamAtaxiaUK

Well done to Manisha Bains and cousins Amandeep & Sandeep for your amazing achievement at competing the London MoRun and raising a fabulous £4564 (inc Gift Aid). This will go a long way to keep to support vital work for a cure for ataxia! #AtaxiaUK #ataxia #Fundraise #ThankYou

To find out more information about online Tribute pages then visit or contact fundraising@ataxia.org.uk. If you are recently bereaved and want more support and assistance, then contact the Ataxia UK helpline on help@ataxia.org.uk.

Our research team would like to hear your stories this Rare Disease Day! How has engaging with our research team helped you better understand your ataxia? Email us at sparrreid@ataxia.org.uk with the subject line 'Rare Disease Day 2025'. Find out more:

Click here to take part If you’ve any questions, please contact erin.whittingham@nice.org.uk.