TwistedKat ♿️
@KatTwisted
Followers
1,417
Following
981
Media
602
Statuses
18,565
Gov policy forced #hospice . PayPal Twistedkitkat @icloud .com ~Current needs Wishlist~
Just a dot on planet Earth
Joined March 2021
Don't wanna be here?
Send us removal request.
Explore trending content on Musk Viewer
Brazil
• 998622 Tweets
Elon Musk
• 684738 Tweets
Chelsea
• 537385 Tweets
Alexandre de Moraes
• 463200 Tweets
Sancho
• 267969 Tweets
Sterling
• 234742 Tweets
Xandão
• 148280 Tweets
Politico
• 142916 Tweets
Adeus Twitter
• 141824 Tweets
#مولد_ولي_العهد
• 122580 Tweets
Threads
• 99495 Tweets
The Sky
• 93907 Tweets
Tchau
• 75170 Tweets
Eddie
• 66121 Tweets
Temple
• 58980 Tweets
CONGRATULATIONS RM
• 49161 Tweets
VPNs
• 46637 Tweets
Bluesky
• 43976 Tweets
CONGRATULATIONS NAMJOON
• 37399 Tweets
#الجناح_مطلب_اهلاوي
• 33939 Tweets
#SmackDown
• 31216 Tweets
Caitlin Clark
• 24983 Tweets
Michigan State
• 21928 Tweets
Oklahoma
• 19617 Tweets
Angel Reese
• 19186 Tweets
野菜の日
• 14948 Tweets
Andrade
• 13188 Tweets
ブラジル最高裁
• 10184 Tweets
Got my hair cut, trying to prepare for an upcoming surgery I know I will need. Thought it would make feel feel good but, they cut WAY too much off and I hate it. 💔Just trying to smile thru the pain was hard enough… *sigh*
Please be kind 😥
192
5
268
Well, I got my referral for a pain pump Dr. Yes, I have heard the horror stories, but I have done my due diligence, so I am being referred to the best in the state. Please be happy for me. In this climate, it’s for the best with my condition, as my disease is rapidly 1/3
40
8
188
@drquinngyn
I wish Drs would stop letting pts be tortured by ANY painful disease. If someone is suffering, treat their pain, IF the use becomes problematic, than treat that condition. Leave the moralistic judgements at the door. Extreme suffering does not “build” anything, it only destroys!
3
8
175
I just got a phone call…..
The disability law center is taking my case!
They are sending out the formal acceptance letter today (plus forms to sign, ie release of medical records etc.) I will have my first meeting this week!
44
23
168
My
#palliativecare
nurse just left. She is taking over my pain management. 😳😭😭😭😭 🥰 🥰
She completely understood everything, and sees the subtle neurological deficits I described.
I can’t remember the last time I felt this much peace.
Or simply felt this seen.
💚
26
14
165
Okay, I know I am just screaming into the void as literally no one with any power to help us cares…
But I would give anything just to have 3 months of adequate pain control before I die. Just 3 months, and I would forgo anything needed from that point on. Just 3 months to get
21
29
151
Nurses & DRs - we need to have a talk. If a pt takes an ER opioid every 12 hrs, you do realize that pill doesn’t exactly work for the whole 12 hrs right? It only works maybe 8 hrs and I’d argue only 6 hrs effectively. So don’t be THAT provider that makes the pt wait 16 hrs. Don’t
16
27
143
Please nobody take this the wrong way, but when in hospice… does the patient ever get a day off just to rest or be alone with their own thoughts??😅 I appreciate all the care, more than I can ever express, I just wish there was one day I could call mine. All mine. Even to sleep
35
13
140
New palliative nurse showed up today.
Her own daughter became a
#cpp
at 19.
It was amazing. Everything I told the last nurse and got mocked for, this lady said “no, that makes absolute sense”.
Zero gaslighting
Zero abuse
B/p was 88/58 though. Not good. She says it’s 1/2
23
12
132
Seems the
#DEA
is getting tired of seeing comments about their failures and how people are dying when they are trying to advertise how they keep people "safe and healthy"
#snowflakes
I didn't use bad language either. 😅
21
37
125
Oooo The DEA is playing hardball now. They aren’t messing around. Having pharmacies leaving you a note to snitch is SURELY gonna stop the cartels and the flow of illicit fentanyl, this time!
30
41
120
I waited 6 months to get into a neurologist. & Today I get a phone call, telling me they have to reschedule & they can’t fit me in until Feb 5.
Meanwhile, I can’t walk or drive …Or even hold my head up without throwing up due to the neurological effects. Appt scheduler 1/2
36
28
122
I have never been one to celebrate my Bday , but today, I woke up with the sun shinning, the birds outside my bedroom window and realized,… I MADE IT! I made it to my 58th bday despite it all! Lmao, now I truly feel like a bad ass! I’m definitely don’t going down easy! 🎉 👸
37
5
119
Does anyone by chance have video of the Pacific Ocean? Anywhere off the coast of California… I promise not to reproduce. I m just in hospice and desperately want to see it again. Maybe if I’m lucky I will be able to feel its energy, life force.. My soul aches to be home….
46
24
114
FYI-Just because I can walk a couple hundred feet w/o my cane at 8 am, & can barely walk that same distance with a walker at noon, doesn’t mean I am not “as disabled”. Passive aggressive comments like “Oh your walking good today” with a smirk on your face, is still ableism 1/2
8
22
109
😱 Omgosh I can’t believe it… I am literally shaking right now.
Just got another call from palliative care. 😯
“Out of the blue”, first thing this morning, my insurance approved the pre auth they had just denied yesterday. 🤪
The nurse is coming!
😅😂😂😭😭
26
10
108
The new medicine from the compound pharmacy, worked! 😭😭
The violent spasms have subsided.
So much so, I was able to eat a light breakfast. My b/p is up closer to normal for the first time in over a month. 98/60
I’m still in a lot of pain due to the compressed nerves, but
25
5
105
Palliative care called, and so far, my insurance is denying care.
They refuse this after all they have denied any care that would help me.
They might as well be denying me air, food, and water. It’s going to have the same effect.
But that’s the goal isn’t it?
20
20
100
Update. Failed colonoscopy prep last last week, due to uncontrollable projectile vomiting. Stomach/intestinal spasms continued, developed severe headache, chest pain & other neurological issues. After continuing to just get worse, I am in the ER once again. 🤡
#hellcare
31
8
102
1st time in 6 yrs, my pain is only a 3. 😌 Actually, I don’t think I have EVER been at a 3. I scrubbed kitchen, including the floors. You know how it is, gotta do that lazy, malingering stuff. 😉 I’ll pay for it tomorrow, but at the moment, who cares. 🤷🏼♀️ I feel human again 🥰
19
7
99
Well….
It appears pharmacists have been lying to me up until now.
You CAN pay cash for your pain meds in this state. They just don’t like it and pharmacy after pharmacy has refused & lied to me.
My new pharmacy (well I have only been with them since March or April) had 1/3
26
19
96
My apologies for not posting sooner about Friday's Lidocaine/ketamine infusion.
It was actually a wonderful experience. The nurses and the Dr were so caring and supportive before, during and after the process. I don't think I have ever felt so safe and cared for in a medical
22
10
97
FYI… Just because a disabled/elderly woman lives alone, and her family can’t be bothered except for maybe a phone call on the holiday, does not make it even remotely open season for you to ask them if you can have their Tv, deep freeze etc when they die. ESP when you can’t
16
11
94
Says, “Not our fault, not our problem. Do you want the appointment or not ?” 😳
Uh, no I guess I don’t, seeing as I may not even survive that long.
US
#hellcare
17
15
90
Still needing someone to go with me to the ER, and help me advocate. I literally can’t go alone (not that I would anyway, these days), I will leave this pinned to my profile until… well, I guess until it would no longer matter, or I find someone. Whichever comes first.
TY 🙏🏻
29
26
85
Now THIS might make a difference here in
#Arizona
. I’ve been waiting for this one to pass. Now I hope recent tragedies don’t infer or set us backwards again.
A new Arizona law requiring search warrants for law enforcement to inspect prescription drug database just passed.
A win after the rising trend of physicians who are frightened to prescribe pain medication.
#CatoHealth
’s
@dr4liberty
explains…
#CatoDrugWar
7
51
87
11
27
85
@mozinqo
@MorgainePen1
@iamharaldur
This country is FAR from “exceptionally accommodating”. And No, “every single business” does not “have to have *easy* access”. How about listening to disabled people instead of trying to invalidate our experience & reality.
0
0
84
If anyone cares to know why I am so angry lately, despite my progress and less pain….
I have been watching my neighbor with the same genetic disease as me, literally waste away. She rapidly became “anorexic” looking from the lack of nutrition, and torturous untreated pain.
5
20
80
Just had a Dr (at a Major university hospital) try and trick me into signing out “AMA”. He had the form and rolled the top and told me to “sign right here”. I asked him flat out if that is what the form was and he said “no” and just kept trying to get me to sign it without 1/2
19
16
82
Palliative care conveniently just “forgot” to send my new nurse today. Appt was suppose to be at 9:30 am and no one showed up. When I called, they said they don’t know what happened but they don’t see me on the schedule at all, and so said they will have to “get back to me” 1/3
12
12
79
Zero problems with letting me pay cash this month while the insurance stuff works through. She even got a pharmacy card that gave me a great discount. Her words “I am concerned about them doing this to you in your condition, and I don’t don’t want you to suffer” 🥰
6
5
81
For the first time in at least 3 years, I was actually able to sit down for about 15 minutes and write. I mean actually write without struggling to think through the pain. And what I wrote actually made sense!
I cannot even begin to tell you the joy that gave me. 😭🥰
1/2
13
6
80
Please Drop pictures of your beloved animals. My heat is so broken I had to let my precious lil Rachel go to a friend. Although I get pictures of her daily and see her once a week, at lest, my heart is just aching for her . Please help cheer me tonight. 😭💔
74
7
80
My life mattered.
I was NOT a “ malingerer”
It was NOT “just in my head”
It was however a life threatening issue that should have not been ignored and/or punted down the line by a failing healthcare system & greedy profiteers.
Soon, the truth will be documented in 1/2
4
6
78
#DEA
administrator
@AnneMilgram
plans on “waiting and seeing” if her continued opioid cuts are going to kill people. She wants DATA. Fuck human lives. Fuck the disabled CURRENTLY suffering TORTURE and DYING. Fuck those already DEAD. She wants to see MORE!
#AbolishtheDEA
20
44
79
Boom 💥 I just filed my first complaint- Ie medical negligence, via the Ins and the state. When you tell a provider you are depressed, they refuse to give you anything but cymbalta even though you tell them something else works far better without the side effects, and then they
10
11
76
I just wanted y'all to know, I love ya. 💜 You guys have been there for me, through thick and thin since 2016, and I know without a shadow of doubt, I wouldn't have made it this long without y'all.
I don't know what's going to happen now, as things are rapidly deteriorating.
12
12
70
My apologies for being quiet so long my
#cpp
friends. I’ve missed y’all terribly, but things had gotten so much worse, it was taking all I had just to breathe through the pain.
Meanwhile, my insurance was busy trying to cut off even my palliative care, without any advanced 1/3
14
19
73
I just reported my palliative nurse to the director, and asked them flat out why they will not adequately treat my pain, and why was I told they would NEVER increase my meds. Director seemed shocked agreed to the point of palliative and said she would get back to me after talking
5
18
71
@DrTomFrieden
🤥 Tell us you didn’t read w/o telling us you didn’t bother to read
“Data were largely derived from low-quality trials, and none involved patients having major or major-complex procedures.”
🤫 Your blatant disregard for those you consider “less than” & their pain is showing 🤡
1
10
71
Current pm clinic wants to try ketamine infusions.
For those of you that have this done,
Please tell me how this helps you (or doesn’t) and what to expect? I’ve never done this before. Thank you
37
16
73
Month…. opioid free I am sure. 🤨
I might be better off just going with some back alley hack, and the corner dope “Dr”. Chances of getting some qol for a few months before I die seems higher. I could go see the beach one last time.
#Hellcare
in America 🙃
12
7
72
@shelley_bean60
@Faithgirlee
@AngelaOBrian5
@lil23rdss
@PTSDAdvocate
@CRPSisaRealPain
@plwin49
@CContrarus
@GeneW22614687
@dawnimatrix
@LondonMurray12
@Merry_Hippie
@Irishbrat1966
@sureuwanttoknow
@ThomasKlineMD
@Mrsyumahotrod
@ibdgirl76
@MediaClymer
@headdock
@SpicyPurritos
@MomalaDearest
@HeatherLinda11
@TLCStruggle
@puppyluvr312
@AdamGentry2021
@CanadaPain
@josephcarolan20
@TheFuglyFrog
@HollySt92337394
@Nashkitty66
@Bilked2TheBrink
@LynnH26159395
@GasserKellie
@OldHeadFighta
@Annemarie55USA
@JosephFalzoneMD
@FollowingForFu2
@MelindaJaneOwe2
@secondchances09
@truth_uni
@JonelleElgaway
@DrRevo
@1959smith715
@PlayLynny4U
@PithyPins
@vendingcomics
@MsKittyresist
@hope411adcock
@TerriMe3
@Danniedean5
It just blows my mind that the same Drs that put cpps on methadone for pain, are now labeling any cpp on methadone as having oud. Definitely some malfeasance/unethical behavior going on in healthcare.
13
26
69
Omg. I just spoke with the RN handling palliative care, and she agrees with me, so is having a social worker call me to help me get the process started! 😳
Are my cries finally being heard? 😧
I’m almost afraid to trust it could really finally happen 🤞🏼
#MyotonicDystrophy
#CPP
13
3
68
Scary. Article is full of propaganda, but even
#Australia
, gets that the
#US
de-prescribing is causing people to turn to the streets or die
"Without access to opioid prescriptions, chronic pain sufferers say they're being left stranded' on SmartNews:
6
22
68
@TLCStruggle
@headdock
@puppyluvr312
@AdamGentry2021
@ibdgirl76
@CanadaPain
@josephcarolan20
@MediaClymer
@PTSDAdvocate
@Faithgirlee
@Irishbrat1966
@CRPSisaRealPain
@TheFuglyFrog
@SpicyPurritos
@HollySt92337394
@Nashkitty66
@HeatherLinda11
@Bilked2TheBrink
@LynnH26159395
@GasserKellie
@OldHeadFighta
@Annemarie55USA
@JosephFalzoneMD
@dawnimatrix
@FollowingForFu2
@MelindaJaneOwe2
@CContrarus
@secondchances09
@truth_uni
@Merry_Hippie
@ThomasKlineMD
@JonelleElgaway
@DrRevo
@1959smith715
@PlayLynny4U
@PithyPins
@vendingcomics
@MsKittyresist
@hope411adcock
@TerriMe3
@Danniedean5
@TrumpWontWork
@Chrissy_8675309
@HowardWill5
@MdParangi
@aander1987
@newhickschick
@Deeenst
@StephenDoheney
@CDCgov
Anybody that talks to The suffering elderly and disabled can Easily see the truth of what’s going on. There’s a lady with my disease that lives three doors down from me and she’s older, but was very very active. No because of no pain care in the last yr she’s made a rapid decline
4
17
65
Saw my primary this morning. Not sure why I even bothered. She’s an absolute gem but even her hands are tied. Apparently the medical system thinks it’s okay to let me suffer with no quality of life, because even estrogen is “not good for my heart” and I could die. I’m beyond done
18
9
69
My nurse put in for in home speech therapy (swallow therapy!! Omg. Game changer!), physical therapy, occupational therapy, and my insurance approved it all. I’m in 😳. What changed? Nothing except getting palliative. The need was denied last 5 yrs until now. There is hope 🥰
14
3
67
@nonopioidchoice
Why are you continuing to spread lies & misinformation? You were warned, and reported.
You zealots are going to be paying a hefty price, when we prove you KNEW the harms you were causing with your extremist propaganda, and kept doing it anyway. Play around and find out.
3
12
65
What goes thru a person’s mind to break into the electric box and shut down an entire apartment complex? A complex with disabled/elderly people on oxygen, Cpaps, bipaps etc, it’s it just plain stupidity or are they literally TRYING TO KILL us off? Woke up at 4am literally gasping
19
5
64
Why is Twitter deleting tweets that mention
#ChronicPain
? We are being silenced once again. Disabled folks are experiencing a genocide in the US! Speak up for us now or they will silence you next!
4
30
66
He is a sadistic racist and eugenicist. My friends are DYING because of his lies and greed. I am dying prematurely because of his lies and greed. Come spend 2 hrs with me & then tell me how I am just a “hoax” or “paid off by pharmaceutical companies”. 2 hours max.
8
21
64
So apparently
@AzCHealthPlan
feels if you are severely dehydrated and blacking out, and still continuing to vomit, due to pain you are not emergent enough to need the ER, you should call their nurse advice line and find someone to take you or drive yourself to an urgent care, or
10
19
62
Saw the gastro Dr yesterday. Shockingly, she was w me for at LEAST 45 min, going over my records as she asked ???, and I told her my story. By the time I was done, she had tears in her eyes, & asked if I had tried MMJ, then emphatically encouraged it, “if allowed” for my qol.
7
3
62
Hospital Neurologist just admitted to me, that in fact, all ANY Dr can do is manage my symptoms better so that I don’t go into these flares. When the pain dr hit that nerve during an esi, he in fact changed my brain, and she agreed I am doing all I can do, and the only way I am
3
15
61
You know things are bad when, every day you see 50-90 yr olds posting on social media, risking judgement from neighbors, just looking for pain relief. Choices left are either suffer, undergo surgery, hit the streets, or suicide. Anything but our
#hellcare
system
5
10
56
Okay
#Cpps
. Here’s yet another chance to be heard! Are you going to act, or just lie down and take the boot up your 🍑?
It’s time to end this
#Opioidhysteria
#warondrugs
#Suicidesdue2pain
#Painpatientgenocide
10
28
59
#Hellcare
is dying, so when do we get to finally watch it 🔥?
#Burnbabyburn
How many more must die before we get a REAL healthcare system? You know, 1 in which Drs/nurses will actually care & treat each individual patient, with the goal of preserving qol & saving LIFE
6
11
59
When an acute injury is never properly treated, it can turn into
#ChronicPain
If you as a Dr are too busying pointing fingers & labeling your pts instead of treating their condition appropriately, you are causing disability & imo have 🚫 business in healthcare
3
18
58
As a member of the cpp community on Twitter now X since 2016, can I please ask one thing of my cpp friends? Don't put out someone else's light in the hopes it will make yours burn brighter. 1) it never works, and 2) as fragile as many are with the pain, & the medical trauma, 1/3
7
16
59
Just checking in with everyone… How are YOU doing ?
I apologize I have not been on or posting much. Things are pretty much in painful limbo for me until I see the Surgeon at the end of April. Nothing exciting on my end to report from my bed 😅
17
7
58
Without SSDI and SSI, many more of us will simply die. It’s inadequate and forced poverty as is! With record inflation, many are already getting sicker and losing weight they can’t afford to lose!
ANYONE even considering this is beyond evil! ☠️
1
42
58
Fail to send script to pharmacy, AND don’t even refill your prazosin you have been in for 7 yrs due to iatrogenic ptsd, for a month (knowing full well you were actively in crisis) That’s a problem.
I’m back bitches! And I’m not playing. 💥😏
1
6
58
black & white, and ALL those who discriminated, violated my human rights, or tried to profit off of my suffering will be named and shamed. Publicly, and in a lawsuit.
Time is running out for all those who have turned their backs on and harmed
#chronicpain
patients.
Tick tock
1
6
57
Are scary AF. But I don’t care how scary they are, I will just die at home alone instead. The next person who calls an ambulance on me is no longer a friend that means well.
And this is the university hospital that is suppose to be doing my surgery next
1
2
55
My apologies for still not interacting much. I’m not trying to be anti social. I got a semi-reprieve for part of a day, & then I went right back into one of the most violent, & longest lasting flares yet. Hurts just to breathe through it.
#DeathbyCDC
#AntiOpioidhysteria
16
6
57
😳 WTAF?!? first they are trying to trick me into signing myself out AMA , and now they are saying I am refusing to leave? What kind of freaking game is this?
I had to walk far to get to the exit too. No wheelchair. No escort. Hadn’t been able to hold anything down in
3
3
55
My affairs in order, help my family prepare, & find some kind of peace with the fact that this country is killing me, despite my committing no crime & doing all that was demanded of me.
Is there not one Dr in this country w the courage to give me 3 months? 🤯😭💔
#MedTwitter
4
12
56
One & 1/2 days and a wake up and I’m moving! Hurray! I won’t lie, it’s been rough and I couldn’t have made it without friends in my condition, but oh it will be so worth it! Safety, accessibility, and a porch with a view of the Catalina’s. (55+ only) Now that sounds like peace!😍
13
5
55
Does ANYONE’s insurance cover lidocaine patches, or do they just deny poor people? I’m just really curious as the cost burden for everything needed other than medications, really seems to be extraordinarily high for those they force into extreme poverty.
31
7
54
@CDCInjury
You cannot claim you didn’t know the “guidelines” were being misused anymore. You cannot claim, you didn’t know the harms and suffering people would be subjected to, or the deaths that would occur. Not anymore. And yet you double down.
Therefore, yes, that makes you murderers.
2
13
52
@dianesbaker1
“Why didn’t she try……” You don’t even hear your own privilege when you say that, so I highly doubt you have ever felt the kind of pain intractable pain patients feel. I would have to be comatose before mmj would touch my pain. That’s not LIVING.
0
6
56
And then TELLING me to “smile” 3 seconds later, is just being an asshole.
Stop expecting disabled people to perform on command.
We are being treated like dogs all day by society, HCW and our government.
No we aren’t “sensitive”
We’re fucking tired.
#Disabled
4
7
51
WTAF?!?! Nurse injected tap water to cover up "hospital misuse" of fentanyl, causing severe infection and approx 10 deaths!
We are consistently being abused by those in healthcare. It never ends!
Check out Brandy Spinal:Pain advocate 🩷's video!
#TikTok
7
12
49
WTAF?! I am in palliative care with an incurable disease & my ins co just refused to fill my script & wants new pre auth. WHY is this even a thing for palliative pts? Are they planning on cutting or force tapering me, while I am already dying prematurely from the negligence? 🤯
5
13
53
@D321Debbie
@MaryinKansas
@dianesbaker1
@GOP
@IntlCrimCourt
@supportprop
@CanadaPain
@Wanita1
@life_is_art___
@ibdgirl76
@CMerandi
@CIAAG_Lauren
@Shasta_Rayne
@Bilked2TheBrink
@ravensspirit68
@sexton_cecilia
@candiomercer
@KJMushung
@Katamac1967
@JoeAllenNewman
@SandraEmery7
@TerryShinshock
@FLSpacePort
@GeneW22614687
Someone who is in recovery from substance abuse, so thinks we all should just suffer or “fix ourselves” and not “just give up”. 🙄
5
1
53
8 days but after 2 bags of fluids I guess I was no longer a fall risk?
Waited outside in the windy cold, in my summer pj shorts, barefoot and ended up having to call ins 4more times because 4 Uber drivers cancelled the ride before even getting there.
Neurological symptoms
1
2
52
Update: Well, yesterday I got word that my old (abusive) palliative nurse was fired after she came back from her vacation. 😏
That was the good news.
Bad news is, I guess in retaliation, she did not forward the preauth for my medications & I will be out within 2 days. 🥺 1/4
9
12
52
I’m moved. Feel like I lost some wrestling match, my whole body hurts, but I have never felt more alive!
Just look at that view off my balcony! Now if I can only stay awake long enough to catch the sunsets! (Or early enough for the sunrise!)
I feel so blessed. 🥰
12
3
51
I don’t know who else needs to hear this, but …
You cannot comply your way out of tyranny.
Period.
What had happened to law abiding cpps is proof of this.
4
19
49
Serious question for our supportive palliative & hospice drs… I can’t seem to get or find a straight answer. Once the body no longer needs/wants food or water, how long does it it take for everything else to start shutting down? Weeks? Months? If someone forces themselves to
29
7
49
I finally have an appt today to get measured for a back brace. YIPPEE!🥳
Anyone else get as excited as me when Ins FINALLY approves a device you’ve needed for months-years? 🙃
8
1
48
Quit using Disabled people to virtue signal, while you ignore our agony & plight, not to mention break the promises YOU made!
#Shameless
For more than 61 million Americans living with a disability, the ADA and Rehabilitation Acts are a source of opportunity, meaningful inclusion, participation, and respect.
Ensuring the American dream is for all of us – not just some of us.
738
1K
6K
8
15
50
Being able to read it. Then they refused to call my insurance to get me home, (my phone was almost dead and it was after 6pm when my ins is closed) I had to ask for a patient advocate. When the “social worker” came to call she told my insurance I was “refusing to leave”
3
6
48
Did you know if you have an injury, that is never treated in the acute phase, for whatever reason (such as misdiagnosis, medical gaslighting, or insurance refusing that MRI etc), after 3 months you are lumped in, labeled & stigmatized with the rest of us
#ChronicPain
patients?
5
13
49
@Esqueer_
@ShoMarq
Do you understand, that 1) acute pain that is not adequately treated, leads to chronic pain, 2) every single body is different, and thus responds differently to different treatment. 3) needing less or different medication, does not make one “stronger” or morally superior. That
2
0
43
Just picked up my meds. WHEW! Another month safe from DEA forced shortages. While I am so grateful this shortage has not affected me too badly, I am keenly aware of how it is affecting so many others, and the stress never seems to fully dissipate even once I know I am safe for
3
9
49
Forced Taper Update:
I spoke with the new PA, and basically let her know, that while I respect her expertise, before I lose anymore quality of life, I really would appreciate it if the head Dr could look over my case. I explained how far I have come, despite my progressive
13
7
47
Progressing, and it could be the only chance I get to have any qol before I pass. If the trial works, this will make me mobile again, so I can start really fighting for us.
Btw I am STILL waiting to hear back from the AZ disability law center since our meeting. They have 2/3
2
2
49
Okay. Well, my ketamine/lidocaine Infusion is scheduled for this Friday.
Then my ganglion Impar the week after, and then my SI joints 2 weeks after that on the 27th
Meanwhile, I got the referral to the pain pump Dr, in my hand last night, so need to get my records sent. 1/2
15
1
47
I have a secret ….
I have decided I am not really dying, I’m just truly a fairy 🧚♂️ being transformed to my true form.
Someone has to flutter through the forests and make sure humans don’t destroy everything after all!
Or maybe I’m just truly a mermaid, 🧜♀️ being transformed
10
1
49
Well, here is a BIG FU 🖕🏼 to palliative care and Osco pharmacies, who are so obsessed w making sure I don't get my meds even one day early, they think it's okay to make someone with heart problems, go out during an EXCESSIVE HEAT WAVE, because they can't possibly process it the
7
12
47
Well…. Apparently I am just freaking batshit insane y’all. There is absolutely nothing wrong with me, and the erratic b/p, tachycardia, enlarged heart, drooping eye lid, the compressed nerves, and horrific spasms trying to push out my intestines, as well as my spine, is just
11
2
46
So… Serious convo… I’m curious
The streets or just accept impending premature death?
How does one even choose when they have been abandoned and they know they are too weak to survive?
15
9
47
You are correct, Representatives SHOULD be accountable to their constituents. So why have you blatantly ignored my letters for the last 3 yrs about disabled patients like me, literally wasting away & dying due to lack of appropriate pain care?
Representatives need to be accountable to their constituents, not big corporations.
With the reintroduction of the Ban Corporate PACs Act, I’m fighting to make Washington work better for Arizonans.
75
61
281
3
16
48